The last week for Grant!

Last Thursday, May 19, 2011 Grant had his swallow study and found out all this time he has been aspirating so they thickened his formula and any liquidy foods to nectar with SimplyThick. On Friday another preemie mom posted on facebook how they didn't want preemies to take SimplyThick because it was causing nec so I didn't give it to over the weekend cause I was too paranoid. Tuesday we went to his monthly appointment and we tested him for 20 minutes on room air and so she decided we can try weaning at home. Also she is sending him to an ent specialist to have them clip his tongue (the extra skin under neath the tongue) and hearing and speech for hearing test and speech therapy. Wednesday we went to his physical therapy for his torticollis and she said he was doing so good with that and he doesn't need to come back! Woohoo!! Today we woke up and took off his oxygen and he did really good till he went to take his 2 naps he would dip down to 92% and go right back up so tonight as soon as he fell asleep his oxygen level went down to 92% and then 91% so I unfornately had to turn on the oxygen and put it back on him. I than called his dr and they said to keep him on the oxygen tonight and retry tomorrow but sound like he isn't ready to come off because he has to be at 93% for atleast 24 hours. My heart is broken, I knew I shouldn't have gotten my hopes up